How will the NDIS decide who to cut off?
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This episode of ABC News Daily explores the impending overhaul of Australia's National Disability Insurance Scheme (NDIS), focusing on how the government plans to determine which of the estimated 160,000 participants will be cut off. The discussion centers on a proposed shift from diagnosis-based eligibility to a functional capacity assessment, emphasizing real-world impact over medical labels. Jess Howlett, a 27-year-old with Level 2 autism, shares her personal reliance on NDIS-funded occupational therapy and psychology, expressing deep anxiety about losing support she cannot afford otherwise. Martin Laverty, a founding figure of the NDIS and CEO of Aruma, warns of a dangerous information vacuum, stressing that the government has not yet revealed the details of the upcoming functional assessment tool—likely based on the WHO’s HUDAS framework—nor how support needs will be measured. He calls for urgent clarity and collaboration between federal and state governments to prevent vulnerable people from being left without essential services. The episode underscores the human cost of policy ambiguity, with both Jess and Martin highlighting systemic flaws: the under-recognition of invisible disabilities like autism, the inadequacy of short-term GP care plans, and the risk of cutting support for people whose lives are stabilized by long-term, tailored assistance. Laverty advocates for a return to the NDIS’s original vision—assessing functional impairment rather than diagnosis—while urging the government to act transparently and responsibly. The episode concludes with a call to action: before sweeping reforms take effect in 2028, the public must know how decisions will be made, and safeguards must be in place to protect those who depend on the system.
The NDIS is shifting from diagnosis-based eligibility to functional capacity assessments, potentially affecting 160,000 participants.
The WHO’s HUDAS tool is likely to be used to assess real-world functional impairment across six domains: cognition, mobility, self-care, communication, participation, and social engagement.
People with invisible disabilities like autism face disproportionate risk due to under-recognition and lack of accessible support outside the NDIS.
Short-term GP care plans (e.g., 10-week limits) are inadequate for chronic conditions like autism and cannot replace long-term NDIS support.
The government has not yet disclosed the details of the new assessment tool, creating widespread uncertainty and anxiety among participants and families.
…and 3 more takeaways available in PodZeus
Introduction: The NDIS at a Crossroads
The episode opens with a promotional segment for Radio National Hour before introducing the central theme: the looming NDIS cuts and the uncertainty around who will be affected.
Jess Howlett’s Story: Life on the NDIS
“I can't tell you how much it's changed my life. Funding for occupational therapy and psychology... it's basically strategists and problem solvers for your specific collection of needs.”
The Fear of Being Cut Off
“If I was able to access this support without the NDIS, I absolutely would be. I can't afford the supports that I have now, pretty much none of them.”
Martin Laverty on the NDIS Reforms
“It needn't be diagnosis that is the entry point to the NDIS, instead getting back to the original idea of the Productivity Commission to assess the functional impairment...”
The Tool and the Uncertainty
“It's not clear to those that I am closest to, and for those families, those mums and dads of children in particular, this uncertainty really regrettably is going to continue for upwards of 18 months to years.”
“If I was able to access this support without the NDIS, I absolutely would be. I can't afford the supports that I have now, pretty much none of them.”
“It needn't be diagnosis that is the entry point to the NDIS, instead getting back to the original idea of the Productivity Commission to assess the functional impairment...”
“I can't tell you how much it's changed my life. Funding for occupational therapy and psychology... it's basically strategists and problem solvers for your specific collection of needs.”
Host
Guests
NDIS
other
Martin Laverty
person
Jess Howlett
person
Aruma
organization
HUDAS
product
World Health Organisation
organization
GP Care Plans
other
ICANN
product
Productivity Commission
organization
Radio National Hour
other
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